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Help Pass Gabriella Miller Kids First Research Act 2.0

Childhood cancer research is underfunded leading to lack of proper treatments for children and many kids losing their lives to cancer. Please help pass the Gabriella Miller Kids First Research Act 2.0. You can help by contacting your legislators (Everyone has one Representative and two Senators).

Let’s really put our Kids First this week! Please help by spreading the word to these key senators that need to help with passing S.1521 Gabriella Miller Kids First Research Act 2.0. Only 10 days left! If you have a Facebook or twitter, help by copy pasting to your own timeline and/or posting directly to the senator’s pages.


Stop Talking and Start Doing: 10-year-old cancer fighter Gabriella Miller Tells It Like It Is!


Thanks to the wonderful efforts of Heroes of Hope Race for Research/The Brad Kaminsky Foundation& Smashing Walnuts toward research for brain cancer, a few years ago I was introduced to a very special little girl named Gabriella Miller, who was diagnosed with DIPG, which is a highly aggressive, difficult to treat, and often terminal type of brain cancer. She was told that there were no treatments for her cancer. But she was a warrior and decided to use her remaining time to help others by creating the Gabriella Miller Kids First Research Act because children’s cancer research was very underfunded. She fought for all children battling cancer and in her famous interview she pleaded with adults to take action, instead of just talking about these issues. Unfortunately, she passed away before the bipartisan bill was signed into law in 2014. The original legislation allocated $126 million for a 10 year program at the National Institutes of Health (NIH).


Why does this legislation have a “2.0” designation? Because the original program was a 10 year program, next year is the last to be appropriated. We can’t afford to lose this valuable program. The 2.0 Kids First legislation will allocate $125 million to extend the program for 5 more years. The amount is extraordinary because it will continue the program and allow it to expand and improve its research and shared data capabilities.

 


Copy the posts below EXACTLY as shown. Do not make any changes! After you paste into your FaceBook post, place your cursor immediately after the name @SenSchumer{here, then hit spacebar once. You will see one or more names to select. @SenSchumer will give you “Senator Chuck Schumer” with a blue checkmark, select it. When you hit post, it will automatically load the “We can’t afford to lose Kids First” graphic. Try it. See sample below. Copy and paste this:

  • Senator Chuck Schumer please continue to build on the success of the original 10 year Kids First Research Act that will end next year. Before year end, please pass S.1521 Gabriella Miller Kids First Research Act 2.0 introduced by Senators Kaine & Cassidy #ChildhoodCancer https://wp.me/P2TETU-2I9

  • Senator Mitch McConnell please continue to build on the success of the original 10 year Kids First Research Act that will end next year. Before year end, please pass S.1521 Gabriella Miller Kids First Research Act 2.0 introduced by Senators Kaine & Cassidy #ChildhoodCancer https://wp.me/P2TETU-2I9

  • Patty Murray Thank you for your past support of kids fighting #ChildhoodCancer and birth defects. Please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package and extend the original program for 5 more years. Our children need this! https://wp.me/P2TETU-2I9

  • Senator Richard Burr Thank you for your past support of kids fighting #ChildhoodCancer and birth defects. Please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package and extend the original program for 5 more years. Our children need this! https://wp.me/P2TETU-2I9

 

Copy the tweet below exactly as shown, then paste it in to your tweet as is. A graphic will automatically appear after you press send.

  • Senator @SenSchumer please continue to build on the success of the original 10 year Kids First Research Act that will end next yr. Please pass S.1521 Gabriella Miller Kids First Research Act 2.0 introduced by Senators Kaine & Cassidy #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @PattyMurray please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @LeaderMcConnell please continue to build on the success of the original 10 year Kids First Research Act that will end next yr. Please pass S.1521 Gabriella Miller Kids First Research Act 2.0 introduced by Senators Kaine & Cassidy #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator please @SenatorBurr continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenTuberville Please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenatorHick please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @ChrisMurphyCT please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenatorBraun please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenatorCollins Please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenatorHassan please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenatorTimScott continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenatorLujan Please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenJackyRosen please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenatorRomney please continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

  • Senator @SenatorBaldwin continue to build on the success of the original ten year Kids First Research Act that will end next year. Please pass S.1521 the Gabriella Miller Kids First Research Act 2.0 in your end of the year package. #ChildhoodCancer https://wp.me/P2TETU-2KW

 

  • Opening: Hi, my name is ___________and the reason I am calling is that I want you to pass the Gabriella Miller Kids First Research Act 2.0 before the end of the year.

  • Your Story: My ___________ is a survivor of neuroblastoma, a cancer that only happens to kids. I don’t want any child or family to go through what he had to endure during his five year battle with cancer. He had to take toxic adult chemotherapy. There was not a single drug available to treat this cancer. Today, adults have over 200 drugs available to fight their cancers, while kids have had only 6 drugs developed for their unique cancers

  • Request: When it comes to research and drug development, kids have been last in line for too long. The original 10 year Kids First Research Program will end next year and it has been a huge success. The Kids First 2.0, bill will extend the NIH program of research and sharing data for 5 more years. We can’t afford to lose this valuable program.

  • Close: Thank you for all the support you have given in the past to Kids with cancer.

  • Video Tweets: After recording your video, and after you copy an entire tweet below and paste into your twitter, place the video link in the space below noted as “DELETE THIS AND PLACE YOUR VIDEO LINK HERE”, then press, “Send.”

  • #ChildhoodCancer kids are always last in line for new drugs and therapies. Make #KidsFirst by passing S. 1521 Kids First Research Act 2.0. Put it in your end of year package. @SenSchumer @PattyMurray @LeaderMcConnell @SenatorBurr DELETE THIS AND PLACE YOUR VIDEO LINK HERE

 


Everyone has one Representative and two Senators

All you need is a computer linked to the internet and your zip code




Information for this post is brought to you by the Smashing Walnuts and 4 Square Clobbers Cancer. For more information please visit visit:


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